Why Specialized Treatment Centers Matter for Mesothelioma
Mesothelioma is a rare and complex cancer that requires specialized expertise for optimal treatment outcomes. Unlike general cancer centers, specialized mesothelioma treatment centers have dedicated teams of experts who focus exclusively on this disease, offering access to the latest treatments, clinical trials, and multidisciplinary approaches.
These centers typically employ a team approach, bringing together medical oncologists, thoracic surgeons, radiation oncologists, pulmonologists, pathologists, and supportive care specialists who collaborate to create individualized treatment plans for each patient.
Benefits of Specialized Mesothelioma Centers
- Access to surgeons with extensive experience in complex mesothelioma procedures
- Availability of cutting-edge treatments and clinical trials
- Multidisciplinary approach with coordinated care
- Higher volume of mesothelioma cases, leading to greater expertise
- Comprehensive supportive care services
- Better overall survival rates compared to general hospitals
Leading Mesothelioma Treatment Centers in the United States
The following centers are recognized nationally for their expertise in treating mesothelioma, pioneering new treatments, and conducting important research:
Home to the International Mesothelioma Program, one of the world's largest and most experienced mesothelioma treatment and research centers.
- Pioneers in extrapleural pneumonectomy (EPP)
- Extensive research program
- Multidisciplinary approach
- International patient services
One of the nation's top cancer centers with a dedicated pleural mesothelioma program and extensive clinical trial options.
- Advanced surgical techniques
- Innovative radiation therapy
- Immunotherapy research
- Personalized treatment plans
Renowned for its expertise in thoracic cancers and pioneering work in mesothelioma treatment and research.
- Specialized mesothelioma program
- Intraoperative photodynamic therapy
- Gene therapy research
- Comprehensive supportive care
West Coast leader in mesothelioma treatment with expertise in both pleural and peritoneal mesothelioma.
- Hyperthermic intraperitoneal chemotherapy (HIPEC)
- Minimally invasive surgery
- Translational research
- Integrative medicine services
Comprehensive mesothelioma program with expertise in multimodal treatment approaches and clinical trials.
- Pleural and peritoneal mesothelioma expertise
- Immunotherapy clinical trials
- Genetic counseling
- Patient navigation services
Nationally recognized for its multidisciplinary approach to mesothelioma treatment across all three campuses.
- Multi-campus expertise
- Comprehensive diagnostic services
- Integrated care model
- Extensive research portfolio
Advanced Mesothelioma Treatments Offered at Specialized Centers
Specialized mesothelioma centers offer access to treatments that may not be available at general hospitals, including:
Multimodal Therapy
Combining surgery, chemotherapy, and radiation therapy in a coordinated approach to attack the cancer from multiple angles. This approach has been shown to improve survival rates for eligible patients.
Extrapleural Pneumonectomy (EPP)
A radical surgery that removes the affected lung, parts of the diaphragm, pericardium, and pleural lining. This complex procedure is performed only by highly experienced surgeons at specialized centers.
Pleurectomy/Decortication (P/D)
A lung-sparing surgery that removes the pleural lining and visible tumors while preserving the lung. This procedure may be an option for patients who cannot tolerate EPP.
Hyperthermic Intraperitoneal Chemotherapy (HIPEC)
For peritoneal mesothelioma, this treatment involves surgery to remove visible tumors followed by heated chemotherapy delivered directly to the abdominal cavity.
Immunotherapy
Advanced drugs that help the immune system recognize and attack cancer cells. Many specialized centers offer clinical trials of new immunotherapy drugs for mesothelioma.
Gene Therapy
Experimental treatments that target genetic mutations in mesothelioma cells. These cutting-edge therapies are typically available only through clinical trials at research centers.
How to Choose the Right Treatment Center
Selecting the right treatment center is a crucial decision that can impact your treatment options and outcomes. Consider these factors:
| Factor | What to Look For | Why It Matters |
|---|---|---|
| Experience | Number of mesothelioma patients treated annually | Higher volume centers typically have better outcomes |
| Multidisciplinary Team | Collaboration between surgeons, oncologists, radiologists, etc. | Ensures comprehensive treatment planning |
| Clinical Trials | Availability of mesothelioma-specific trials | Access to cutting-edge treatments |
| Surgical Expertise | Surgeons specializing in mesothelioma procedures | Complex surgeries require specialized skills |
| Location & Logistics | Travel requirements, accommodation options | Practical considerations for treatment duration |
| Insurance Acceptance | Network participation and financial counseling | Affordability and coverage of treatment |
The Process of Seeking Treatment at a Specialized Center
If you're considering treatment at a specialized mesothelioma center, here's what to expect:
Initial Consultation
Most centers offer remote consultations to review your case before requiring travel. You'll need to provide medical records, imaging studies, and pathology reports.
Comprehensive Evaluation
If accepted as a patient, you'll undergo a thorough evaluation including advanced imaging, pulmonary function tests, and possibly additional biopsies.
Multidisciplinary Review
Your case will be reviewed by a team of specialists who will collaboratively develop a treatment plan tailored to your specific situation.
Treatment Planning
You'll meet with your treatment team to discuss the recommended approach, potential benefits, risks, and alternatives.
Treatment Implementation
Your treatment plan will be implemented, which may involve surgery, chemotherapy, radiation, or a combination approach.
Follow-up Care
After initial treatment, you'll receive a follow-up plan that may involve coordination with local providers and periodic check-ups at the center.
Financial Assistance and Travel Support
Many mesothelioma treatment centers offer financial counseling and may have resources to help with travel expenses, lodging, and other costs associated with treatment away from home. Some organizations also provide grants or other assistance to mesothelioma patients seeking specialized care.
Frequently Asked Questions About Mesothelioma Treatment Centers
How do I get a referral to a specialized mesothelioma treatment center?
You can typically self-refer to most specialized mesothelioma centers by contacting them directly. However, having your current physician make the referral can sometimes expedite the process. Most centers have dedicated coordinators who can guide you through the referral process.
Will my insurance cover treatment at a specialized center?
Most major insurance plans will cover treatment at specialized cancer centers, especially if they are within your network or if you obtain a referral from your primary oncologist. However, it's important to verify coverage with your insurance provider and the treatment center's financial counselors before beginning treatment.
How long will I need to stay at the treatment center?
The length of stay depends on your specific treatment plan. Surgery may require a hospital stay of 1-2 weeks, followed by recovery time nearby. For chemotherapy or radiation, you may need to stay locally for several weeks to months. Many centers have arrangements with nearby lodging facilities for patients and families.
Can I get a second opinion without changing treatment centers?
Yes, most specialized centers welcome patients seeking second opinions. You can have your case reviewed without committing to transfer your care. This can help you make an informed decision about where to pursue treatment.
What if I live far from a specialized mesothelioma center?
Many centers have experience working with patients who travel for treatment. They can often coordinate some aspects of care with your local providers to minimize travel requirements. Some centers also offer remote consultation services and can help arrange travel and lodging.
Find Help and Resources for Mesothelioma Treatment
If you or a loved one has been diagnosed with mesothelioma, accessing specialized treatment can make a significant difference in outcomes.
Try our Mesothelioma Compensation CalculatorGet a free estimate of your potential compensation to help cover treatment costs